I think we feel like we are a bit back on track after a flat-out week.

The first couple of weeks after coming back were a bit of a downer for Mike with having nothing arranged by way of a program, people were busy and we were a bit distracted by the upcoming story. I am pleased to report that we seem to be back to the usual complete madness at the blue house with people dropping in all the time. I know how much it lifts Mike’s spirits so thankyou to everyone who has popped in to say hi in the last couple of weeks.

Despite still having a dreadful cough, Mike seems to be pretty much mended from whatever lurgy he had when we first returned and has set himself up a full program to keep himself and his carers busy! He has been checking out gym’s but managed to sort out a membership with MSAC during the week (they have been absolutely fantastic and are keen to support him which is great!). He has been for a session to check out the equipment and starts in earnest with the trainer next week. This is on top of the 4 physio/hydro sessions that he is entitled to and also the extra physio and feldenkrais that we have organised. He has also found a brilliant hand therapist so lets all think good thoughts for those useless hands! And, as always, the wonderul Harri is making time for a couple of massages a week – so he is busy, busy, busy! We are also trying to incorporate a bit of stick “walking” in to his daily routine to make sure he spends time upright and gets balance practice and a bit of strength in those skinny little legs.

It has been really good getting Mike back in to a good early wake-up routine as I think we just all function better that way. Also, last weekend he purchased himself a michellan man jacket which he is now officially in love with – he is now busily lining up footy games that he can keep himself warm at! He was up in time and dressed warmly enough to drop Ash at kinder early this week as a practice run for when i am back at work – the kinder was great, making sure that he could get in to the centre and to Ash’s room – although I am not entirely convinced that Ash will actually sign herself in!

It has also been a great week with lots of kids around – it was starting to feel a bit tragically quiet here so we are glad to have lots of kids dropping in again, although …. I am thinking it is a bit easier (and quieter) in summer when they can blow of steam on the tramp and play outside rather than getting every single toy off every shelf in the play room!!

A big thankyou to all the people who have been in touch since the Project Walk story aired last Sunday night. I will endeavour to reply to your e-mails over the next week. We were very worried about the story – not being huge fans of sensational tv and being very wary of journalists – but congratulations to Channel 7 – particularly Niki and Rhaini. Whilst, if we had a say, the story would have included a lot more footage of Mike using the equipment at Project Walk – we were really happy that it was a positive story about Project Walk and of trying to make the most of what you have. I guess we had also hoped that there would be more emphasis on the benefits of exercise in general, not such a focus on walking. Obviously being able to walk 20m with your hands strapped to sticks is not highly functional and doesn’t change all the other dreadful aspects of quadraplegia (or paraplegia) but being able to do some form of exercise (which was really out of the question for Mike with such limited use of his hands and arms) and strength training is as good for the mind as it is for the body.

Hopefully a couple of nice days this weekend so he can get some time on the bike as I believe he has grand plans of doing a team duathlon before the end of the season — boy I hope some arrangement can be made so he can do the ‘transition’ from his bike without the 20 mins it takes us to get him off and that Sammy is running fast so that they still make it in in the time limit!! And go the Wallabies – hopefully we can stay awake long enough tonight to watch the game (particularly as we don’t have Foxtel so will be at a friends place!).

If anyone wants to watch the video of Mike on Sunday Night, Channel 7 have the video on their website.

Click here to watch the video.

Click here for the link to Mike’s Project Walk Story on the Ch 7 website.

Just  a very quick update for any people viewing the site for the first time.

For those of you who have not visited the site before – welcome and feel free to have a look around …. the posts track Mike’s progress from the time of accident last year thru to now. It gives details of his ups and downs thru the very bad times and then tracks his hard work to be where he is today. You will see from this view how long and hard the work has been and the huge support that Mike (and we) have had thru our journey. Have a look thru the photo’s – particularly the Rainbow Journey presentation which is a pictorial version of his journey to now.

The website was created by some of our wonderful friends and is used primarily as a communication tool to keep friends and family from far away up to date on what we are doing. The website has grown to incorporate some fundraising initiatives to help Mike be the best he can be.

The money raised to date has been used to assist with the trip to Project Walk, to purchase the FES bike and a recumbent bike which have helped Mike get where he is today. Now we are trying to raise funds to help build a house with space for Mike to move and exercise! He also wants some special equipment:

- total gym – to improve leg strength and arm strength and mobility;
- cable machine – to isolate particular leg movements to allow functioning of not working or incredibly weak muscles working;
- exercise bike – for cardio fitness;
- crawling machine – to retrain co-ordination to separate messages to arms and legs.

As well as helping as helping Mike, we have and are looking to do further work with wheelchair sports for kids and purchasing a recumbent bike for use at re-hab for other patients.

The current fundraising that we have going at the moment is the cycle kit and of course donations always help us keep Mike on a very busy schedule to regain as much function as possible - refer to the donations pages if you are interested in this (it is tax deductible, just follow the instructions on the page).

A nice quick post to let you know that this Sunday night on the show called Sunday Night on Channel 7 at 6.30pm I will be featured in one of the stories.  Channel 7 just happened to be doing some filming at Project Walk whilst I was there and they were quite interested by this Australian guy who could walk a bit on sticks!  I am hoping that it is a nice positive story about working hard and what Project Walk has to offer.  It should be, the interviews that were done seemed positive so I am hoping it is a good show.  For those of you who attended the benefit dinner and others it will hopefully give a good overview of what you helped me do.

There is so much more for me to achieve to become useful, as what I’ve achieved so far really is just a set of party tricks!  The next thing will be to turn the use of the sticks into something I can do myself without needing to be strapped to them.  If I can pick the sticks up to get out of bed or out of the chair and make my way to the car and sit in the drivers seat then look out!  How many willing passengers will I have to take a ride with the c4 quadriplegic?  This is a long way off but it is something I am aiming for and it will take a lot of therapy on my hands, arms and wrists to get to the point that I can do this.

Anyway, it is great to be back and getting some therapy again, and I will be back in the gym in the next day or two.  If you are bored on Sunday night, feel free to tune in to Channel 7 to watch the show.

Cheers,

Mike

A big weekend in and around the Blue House ….. Lots of visitors which is great, some ‘proper’ food (ie, Melbourne brunch), and a spot of ten-pin bowling.

We think Ash is enjoying being home – she is certainly loving seeing all her friends again …. Saturday morning started with “mummy, what day is it? (Saturday) do I have kinder? (No, mummy and daddy are home with you all day) which of my friends is coming over today?”

With the cancellation of a few appointments last week it appears that Mike has (as usual) taken his recovery in to his own hands (actually, it was mostly feet). We went ten-pin bowling and it was great – Ash loved it (after she got over how noisy it was and the fact that it was scary for the pins to be knocked over and pushed down the back). I actually just think that she loved the shoes! Can you believe they make them that little! Anyway, we decided that if we all had to wear the shoes then so did Mike and we set up the bumper rails and got the ball ramp happening. Ash and Chloe loved helping Mike get the ball from the ball rack to the top of the ramp. Mike decided that as his fingers would not allow him to hold the ball at all he would push the ramp with his foot to dislodge the ball and send it down the aisle. First game he bowled nearly 100, and I think he can blame lots of bad shots on my not being able to line up the ramp very well! Having proven that his leg could push the ramp, and being up for another challenge, towards the end of the second game he decided to see how his reach and arm strength were going. He could actually reach the ball on top of the ramp (if he wheeled his chair up under it) and had enough strength to push it down the ramp – I think we were all really surprised. Not sure how much he really enjoyed it but was a great family outing and good ‘arm practice’.

Hopefully this week we can get going a bit more with some more structured exercise and get back in to something a bit  more like the Project Walk routine to have us all up and moving a bit earlier.

(no, we have not turned in to smurf’s)

After a longer than expected flight and a diversion thru Sydney we have made it safely home and back to the Blue House. It is very nice being home but we are all struggling a bit with jet-lag ….. Ash is the master of getting up at 2am and announcing that she is starving! Hoping that we can shake that fairly quickly.

Our last week at Disneyland was a really nice family break and I know Mike enjoyed going on a few rides. He is pretty stiff and sore after a week now of not exercising (Project Walk style) so we are hoping to get him back in to work early this week. He finds his back does not get nearly as sore and he is much more comfortable when he is moving about and using lots of muscles. It will be very interesting to see what his physio thinks of the improvements in just 7 weeks of intensive work.

We hope Pat is enjoying his time with the AIS tri team and can’t wait until he is back to pick up where Project Walk left off.

A huge thankyou to our wonderful friends who made sure there was fresh fruit and veg in the fridge, milk and bread and a meal! You are amazing. And to Jacquie who left the house so clean that we have decided that floors are dreadful and need to be re-polished! I have a bit of a lurgy (no, it is not swine flu, I have been checked!!) so not having to go straight out to the shops was awesome! Also, thanks to Sal who has stepped up to carer duty when none of the carers for the weekend or Monday showed up!! Oh, it is so good to be home!!!

Not much else to report at the moment as we try to settle back in to the blue house and set up a schedule for Mike to keep him moving and improving. Thankyou to everyone who helped us get over to Project Walk, it was an amazing experience and something that I hope someday will be available to all SCI patients here (who want it). We now have the foundation to keep working on small improvements to get Mike as good as he can be, and hopefully in the process drastically increase his quality of life.

Also, in other news while we were away the next lot of cycle kit arrived so if you are missing something from an order, let me know! We also have a few sets of arm-warmers (white with michaelforbes.org on the arm) and winter gloves (black with michaelforbes.org) on the front.

Mike is hoping to do an update when I unpack the bags enough to clear space to setup the computer on his table and we have some more footage to put on.